Bear RA: Is patient-centered care an outmoded concept? accessed September 15, 2014., [http://www.kevinmd.com/blog/2012/04/patientcentered-care-outmoded-concept.html]
Institute of Medicine: Crossing the Quality Chasm: A New Health System for the 21st Century. National Academy Press, Washington, DC; 2001.
Stockie S: Making patient-centred care a reality for Ontario Hospitals. In MBA Thesis. SB HIMP 6900, Schulich School of Business, York University, Toronto; 2012.
Dialysis and patient-centered care. accessed September 15, 2014., [http://devontexas.com/2013/08/21/dialysis-and-patient-centered-care-2/]
Berwick DM: What patient-centered care should mean. accessed September 15, 2014., [http://patientprivacyrights.org/wp-content/uploads/2010/02/What-Patient-Centered-Should-Mean.pdf]
Hibbard J, Greene J: What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs. Health Aff 2013, 32: 2207.
Patient engagement and patient-centered care. accessed September 15, 2014., [http://esrdnetwork.org/patients-families/pfcc/]
Singhal R, Hux JE, Alibhai SM, Oliver MJ: Inadequate pre-dialysis care and mortality after initiation of renal replacement therapy. Kid Intern 2014.
BC Renal Agency: For Patients. 2013, accessed September 15, 2014., [http://www.bcrenalagency.ca/patient]
National Kidney Foundation: NKF Cares: Patient information center. accessed September 15, 2014., [http://www.kidney.org/patients]
American Association of Renal Patients: Education. Become proactive in your healthcare. 2013, accessed September 15, 2014., [https://www.aakp.org/education.html]
Fraser SD, Roderick PJ, Casey M, Taal MW, Yuen HM, Nutbeam D: Prevalence and associations of limited health literacy in chronic kidney disease: a systematic review. Nephrol Dial Transplant 2013, 28: 129.
Fadem SZ, Walker DR, Abbott G, Friedman AL, Goldman R, Sexton S, Buettner K, Robinson K, Peters TG: Satisfaction with renal replacement therapy and education: the American Association of Kidney Patients Survey. Clin J Amer Soc Nephrol 2011, 6: 605.
Young BA: Health Literacy in Nephrology: Why is it Important? Amer J Kidney Dis 2013, 62: 3.
Finkelstein FO, Story K, Firanek C, Barre P, Takano T, Soroka S, Mujais S, Rodd K, Mendelssohn D: Perceived knowledge among patients cared for by Nephrologists about chronic kidney disease and ESRD therapies. Kid Int 2008, 74: 1178.
Pierratos A: Patient Education in Chronic Kidney Disease and Dialysis. Semin Dial 2013, 26: 135.
Schell JO: Discussion of kidney disease trajectory by elderly patients and Nephrologists: a qualitative study. Amer J Kidney Dis 2012, 59: 495.
Green JA, Mor MK, Schields AM, Sevick MA, Palevsky PM, Fine MJ, Arnold RM, Weisbord SD: Prevalence and demographic and clinical associations of health literacy in patients on maintenance hemodialysis. Clin J Amer Soc Nephrol 2011, 6: 1354.
Cavanaugh KL, Wingard RM, Hakim RM, Eden S, Shintani A, Wallston KA, Huizinga MM, Elasy TA, Rothman RL, Ikizier TA: Low health literacy associates with increased mortality in ESRD. J Amer Soc Nephrol 2010, 21: 1979.
Kleinpeter MA: Health literacy affects peritoneal dialysis performance and outcomes. Adv Perit Dial 2003, 19: 115.
Green JA, Mor MK, Sheilds AM, Sevick MA, Arnold RM, Palevsky PM, Fine MJ, Weisbord SD: Associations of health literacy with dialysis adherence and health resource utilization in patients receiving maintenance hemodialysis. Amer J Kidney Dis 2013, 62: 73.
Davis TC, Long SW, Jackson RH, Mateaux EJ, George RB, Murphy PW, Crouch MA: Rapid estimate of adult literacy in medicine: a shortened screening instrument. Fam Med 1993, 25: 391.
Chew LD, Bradley KA, Boyko EJ: Brief questions to identify patients with inadequate health literacy. Fam Med 2004, 36: 588.
The Talking Cure for Healthcare. 2013, accessed September 15, 2014., [http://online.wsj.com/news/articles/SB10001424127887323628804578346223960774296]
Levinson W, Lesser CS, Epstein RM: Developing physician communication skills for patient-centered care. Health Aff 2010, 29: 1310.
Moore P, Mercado S, Artigues M, Lawrie TA: Communication skills training for health care professionals working with patients who have cancer. The Cochrane Library 2013.
Communication Skills Training for Health Professionals. Chapman and Hall, London; 1996.
Schell JO: Communication skills training for dialysis decision-making and end-of-life care in Nephrology. Clin J Amer Soc Neph 2013, 4: 675.
Roter DL: Improving physicians interviewing skills and reducing patients’ emotional stress. A randomized clinical trial. Arch Int Med 1995, 155: 187.
Lorig K, Sobel DS, Stewart AL, Brown BW, Bandura A, Ritter P, Gonzalez VM, Laurent DD: Evidence suggesting a chronic disease self-management program can increase health status while decreasing hospitalization: a controlled trial. Med Care 1999, 37: 5.
Novak M, Costantini L, Schneider S, Beanlands H: Approaches to self-management in chronic disease. Semin Dial 2013,26(2):188.
Lorig KR, Holman H: Self-management education: history, definitions, outcomes, and mechanisms. Ann Behav Med 2003, 26: 1.
Patient Self-Management Advisory Committee: Self- Management in Theory and Practice - a Guide for Healthcare Providers. Southwest LHIN, Ontario, Canada; 2009.
Sanders KA, Whited A, Martino S: Motivational interviewing for patients with chronic kidney disease. Semin Dial 2013, 26: 175.
Schatell D: Web-based kidney education: supporting patient self-management. Semin Dial 2013, 26: 154.
Ong S, Jassal SV, Porter E, Logan AG, Miller JA: Using an electronic self-management tool to support patients with chronic kidney disease (CKDD): A CKD Clinic Self-Care Model. Semin Dial 2013, 26: 195.
Murray MA, Bissonnette J, Kryworuchko J, Gifford W, Calverly S: Whose choice is it? Shared decision- making in Nephrology Care. Semin Dial 2013, 26: 169.
Orsino A, Cameron JI, Seidl M, Mendelssohn D, Stewart DE: Medical decision-making needs and information needs in ESRD patients. Gen Hosp Psychiatry 2003, 23: 324.
Morton RL, Tong A, Howard K, Snelling P, Webster AC: The views of patients and carers in treatment decision-making for CKD: Systematic review and thematic synthesis of qualitative studies. BMJ 2010, 340: c112.
Holley JL: Advance Care Planning in CKD/ESRD: An evolving Process. Clin J Amer Soc Neph 2012, 7: 1033.
Renal Physicians Association Clinical Practice Guideline: Shared Decision-Making in the Appropriate Initiation of and Withdrawal from Dialysis. 2nd edition. RPA and ASN; 2010.
Davison SN, Jhangri G, Holley JL, Moss AH: Nephrologists reported preparedness for end-of-life decision-making. Clin J Amer Soc Neph 2006, 1: 1256.
Combs SA, Culp S, Holley JL, Moss AH: Palliative Care training during Fellowship: National Survey of 2nd year U.S. Nephrology Fellows. 2013 ASN Abstract FR-OR079. J Amer Soc Neph 2013, 24: 54A.
McAdoo SP, Brown EA, Chesser AM, Farrington K, Salisbury EM: Measuring the quality of end-of-life management in patients with advanced kidney disease: The pan-Thames renal audit. Nephrol Dial Transplant 2012, 27: 1548.
Bear RA: Personal communication.
Manns B, Hemmelgarn B, Lillie E, Crowe S, Cyr A, Gladish M, Large C, Silverman H, Toth B, Wolfe W, Laupacis A: Setting research priorities for patients on or nearing dialysis. CJASN 2014, ePress, doi:10.2215/CJN.01610214.
Zacharias JM, Davison SN, Chochinov HM: Dignity and quality of life in end stage renal disease patients, close to end of life. 2013 ASN Abstract FR-OR047. J Amer Soc Neph 2013, 24: 47A.
Pittman Z, McIntyre CW: A systematic exploration of individual hemodialysis patient preferences for treatment outcomes: treatment or survival. 2013 ASN Abstract FR-OR013. J Amer Soc Neph 2013, 24: 39.