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Table 1 Baseline characteristics of 320 INSIGHT participants by parental interest in genetic testing

From: Parental attitudes to genetic testing differ by ethnicity and immigration in childhood nephrotic syndrome: a cross-sectional study

   Parental interest in genetic testing p value
Total (n = 320) Yes (n = 271) No/uncertain (n = 49)
  n (%) or mean ± SD or median (interquartile range)  
Parent characteristics     
 Age (years) (n = 297) 41.4 ± 7.4 41.8 ± 7.4 39.0 ± 6.6 0.01
 Education level 0.5
  Primary/high school 86 (26.9) 71 (26.2) 15 (30.6)  
  University/graduate 234 (73.1) 200 (73.8) 34 (69.4)  
 Self-reported ethnicity (n = 319) <0.001
  European 121 (37.9) 111 (41.1) 10 (20.4)  
  South Asian 112 (35.1) 84 (31.1) 28 (57.1)  
  East/Southeast Asian 28 (8.8) 21 (7.8) 7 (14.3)  
  Othera 58 (18.2) 54 (20.0) 4 (8.2)  
 Immigration status (n = 319) <0.001
  Born in Canada 131 (41.1) 123 (45.6) 8 (16.3)  
  Born outside Canada 188 (58.9) 147 (54.4) 41 (83.7)  
 Duration of time in Canada (n = 307) 0.08
  >10 years 257 (83.7) 225 (85.2) 32 (74.4)  
  ≤10 years 50 (16.3) 39 (14.8) 11 (25.6)  
 Language spoken at home (n = 316) 0.009
  English only 204 (64.6) 183 (68.0) 21 (44.7)  
  English and other language 26 (8.2) 20 (7.4) 6 (12.8)  
  Other language only 86 (27.2) 66 (24.6) 20 (40.5)  
Child characteristics     
 Male children 202 (63.1) 170 (62.7) 32 (65.3) 0.7
 Child age (years) 9.4 [5.6–15.0] 10.5 [6.0–15.2] 7.0 [4.9–10.3] 0.01
 Family history of kidney disease 99 (30.9) 88 (32.5) 11 (22.5) 0.2
 Family history of CVDb, diabetes, or hypertension 100 (31.3) 90 (33.2) 10 (20.4) 0.08
 Initial steroid resistance 20 (6.4) 16 (6.1) 4 (8.3) 0.5
  1. p values are calculated using χ2, t test, or Fisher’s exact test. Age is calculated at time of questionnaire completion. Variables with incomplete information for all 320 parents have population stated in brackets
  2. aOther includes Middle Eastern, West Indian/Caribbean and African, Mexican/South and Central American, Aboriginal, and Multi-ethnic
  3. bCardiovascular disease