Skip to main content

Table 1 Baseline characteristics of 320 INSIGHT participants by parental interest in genetic testing

From: Parental attitudes to genetic testing differ by ethnicity and immigration in childhood nephrotic syndrome: a cross-sectional study

  

Parental interest in genetic testing

p value

Total (n = 320)

Yes (n = 271)

No/uncertain (n = 49)

 

n (%) or mean ± SD or median (interquartile range)

 

Parent characteristics

    

 Age (years) (n = 297)

41.4 ± 7.4

41.8 ± 7.4

39.0 ± 6.6

0.01

 Education level

0.5

  Primary/high school

86 (26.9)

71 (26.2)

15 (30.6)

 

  University/graduate

234 (73.1)

200 (73.8)

34 (69.4)

 

 Self-reported ethnicity (n = 319)

<0.001

  European

121 (37.9)

111 (41.1)

10 (20.4)

 

  South Asian

112 (35.1)

84 (31.1)

28 (57.1)

 

  East/Southeast Asian

28 (8.8)

21 (7.8)

7 (14.3)

 

  Othera

58 (18.2)

54 (20.0)

4 (8.2)

 

 Immigration status (n = 319)

<0.001

  Born in Canada

131 (41.1)

123 (45.6)

8 (16.3)

 

  Born outside Canada

188 (58.9)

147 (54.4)

41 (83.7)

 

 Duration of time in Canada (n = 307)

0.08

  >10 years

257 (83.7)

225 (85.2)

32 (74.4)

 

  ≤10 years

50 (16.3)

39 (14.8)

11 (25.6)

 

 Language spoken at home (n = 316)

0.009

  English only

204 (64.6)

183 (68.0)

21 (44.7)

 

  English and other language

26 (8.2)

20 (7.4)

6 (12.8)

 

  Other language only

86 (27.2)

66 (24.6)

20 (40.5)

 

Child characteristics

    

 Male children

202 (63.1)

170 (62.7)

32 (65.3)

0.7

 Child age (years)

9.4 [5.6–15.0]

10.5 [6.0–15.2]

7.0 [4.9–10.3]

0.01

 Family history of kidney disease

99 (30.9)

88 (32.5)

11 (22.5)

0.2

 Family history of CVDb, diabetes, or hypertension

100 (31.3)

90 (33.2)

10 (20.4)

0.08

 Initial steroid resistance

20 (6.4)

16 (6.1)

4 (8.3)

0.5

  1. p values are calculated using χ2, t test, or Fisher’s exact test. Age is calculated at time of questionnaire completion. Variables with incomplete information for all 320 parents have population stated in brackets
  2. aOther includes Middle Eastern, West Indian/Caribbean and African, Mexican/South and Central American, Aboriginal, and Multi-ethnic
  3. bCardiovascular disease